Benedict's Law: Families call for stronger allergy protections in NI schools

Benedict's Law:  Families call for stronger allergy protections in NI schools

The mother of a young boy who tragically lost his life due to a severe allergic reaction at school is advocating for new legal protections for pupils in Northern Ireland. Helen Blythe has been pushing for mandatory training for teachers and the requirement for each school to implement a designated allergy policy. Her campaign follows the death of her five-year-old son, Benedict, who passed away after accidentally being exposed to cow’s milk protein at a school in England in December 2021.

Helen Blythe’s efforts contributed to the introduction of Benedict’s Law in England, a legislative measure aimed at improving allergy safety in schools. She recently sought to present her case in Northern Ireland directly to the Education Minister, Paul Givan, but was informed that he was “too busy” to attend a scheduled face-to-face meeting. Blythe expressed disappointment at the lack of engagement, stating, “What’s difficult for us and for those families is that a lot of this rests on the shoulders of the minister and unfortunately we’ve not seen the engagement from the minister that we would like.” She further described the emotional impact of this response on families dealing with allergies, emphasizing the hope still held for a future change in approach.

In response, the Department of Education explained that a delay in assembly business had kept the minister in the chamber during the planned meeting time. However, they clarified that after proceedings finished, the minister met with Helen Blythe along with parents and representatives from the National Allergy Strategy Group. Attendees included experts such as Professor Adam Fox and Dr Caoimhe Glancy from the Children’s Allergy Clinic NI. The department also highlighted that, in Northern Ireland, schools currently follow guidance rather than legal requirements concerning allergy management, leading to inconsistent safety measures across different institutions.

Helen Blythe recounted the circumstances surrounding Benedict’s death, revealing that her son was a pupil at Barnack Primary School near Peterborough. An inquest found that the school failed to fully implement the preventative measures designed to protect Benedict, with risks identified including contamination with milk and delays in administering his adrenaline auto-injector. Blythe explained, “We knew that he had allergies and multiple allergies and we communicated that to the school when he started,” but added, “The plan that we had provided to the school wasn’t communicated to the staff members caring for him. There weren’t spare adrenaline auto-injectors.” Benedict’s Law, arising from this tragedy, mandates that schools carry spare EpiPens and ensure staff are trained, with the goal of establishing clearer and uniform standards across schools to enhance the response to allergic emergencies. Blythe also noted support from teacher unions for the measures, highlighting that such education and training help school staff feel prepared and confident when managing allergic reactions

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