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A devastated mother from Swansea is grappling with the heartbreaking reality of her four-year-old son, Tate, being diagnosed with childhood dementia, specifically Sanfilippo Syndrome. Tammy McDaid expressed her profound sadness over the prognosis that Tate may not survive into adulthood, prompting her to set an ambitious fundraising goal of £11,000. The funds are intended to facilitate Tate’s potential participation in clinical trials abroad, offering a glimmer of hope in slowing down the disease’s progression.
With a heavy heart, Tammy emphasized the importance of cherishing every moment with Tate, given the lack of a current cure for his condition. Despite his initial diagnosis of autism at age two, Tate’s vibrant personality has always shone through, earning him the title of Tammy’s “little sidekick.” Tammy lauded his joyful demeanor, noting his preference for simple pleasures and infectious smile that light up her world.
Tate’s love for running and climbing has inspired Tammy’s quest for clinical trials that could preserve his mobility for as long as possible, acknowledging the inevitable challenges that lie ahead. Grateful for the overwhelming support shown through a successful GoFundMe campaign, Tammy experienced a renewed sense of hope amidst the emotional turmoil. She recognized the critical nature of Tate’s next year, as signs of deterioration may become more apparent around his fifth birthday.
In her determination to secure a spot for Tate in a clinical trial, Tammy remains steadfast in her pursuit, armed with the knowledge that time is of the essence. As the family prepares to navigate the complexities of Sanfilippo Syndrome, Tammy’s unwavering love and resilience stand as a testament to her devotion to Tate’s well-being. Marking World Sanfilippo Awareness Day, Tammy aims to shed light on the condition while advocating for increased understanding and support for affected families like hers
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