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In a revelation that changed her life, Maggie May McHugh discovered at the age of 15 that she had Foetal Alcohol Spectrum Disorder (FASD) after being informed by her social worker. The condition, caused by alcohol in the mother’s blood passing to the baby through the placenta, is irreversible and can lead to a lifetime of challenges. Prior to the diagnosis, Maggie struggled with understanding why she felt different from her peers, making mistakes, and facing learning difficulties that were hard for her to comprehend.
Currently not recognized as a disability in either Northern Ireland or the Republic of Ireland, FASD poses a significant challenge for individuals like Maggie and others living with the disorder. Despite the lack of specific treatment for FASD, the Department of Health acknowledges the importance of supporting children with FASD and other neurodevelopmental conditions. However, there is a vital need for early diagnosis and specialized support to make a difference in the lives of those affected by FASD.
Maggie May McHugh emphasizes the importance of shifting away from blame and shame towards mothers who may have unknowingly contributed to FASD. Rather than focusing on the past, she advocates for increased recognition and support for individuals living with the disorder. As a vocal spokesperson for the cause, Maggie believes that understanding, empathy, and assistance are essential in alleviating the isolation and challenges faced by those with FASD. Through her advocacy, she hopes to raise awareness and promote acceptance of individuals living with FASD in society.
Joined by others like Reece, a seventeen-year-old who has been open about his struggles with FASD, the call for awareness and support grows stronger. Reece, supported by his adoptive parents and determined to bring about change, exemplifies the resilience and determination of individuals living with FASD. As advocates like Reece, Maggie May McHugh, and their supporters continue to raise awareness and push for recognition of FASD as a disability, the hope for a more supportive and understanding society remains steadfast
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