Adenomyosis: 'The pain was so agonizing, I walked with a stick'

Adenomyosis: 'The pain was so agonizing, I walked with a stick'

Lana Boocock recalls enduring an 85-hour-long labor when she welcomed her first child, a challenging experience that led to her baby spending time in neonatal intensive care. The difficulties she faced during the birth of both her children became more understandable after she received a diagnosis of adenomyosis, a condition that impacts over 10% of women. Consultant gynaecologist Anthony Griffiths highlights that pregnant women with adenomyosis face increased risks during labor, but these risks often go unnoticed due to under-diagnosis.

Adenomyosis is a medical condition characterized by the abnormal growth of the lining of the womb into the muscle in the wall of the womb. This condition can cause severe menstrual pain, heavy bleeding, pelvic discomfort, and painful intercourse. Dr. Griffiths emphasizes that pregnant women with adenomyosis are at a higher risk of complications such as miscarriage, premature birth, and pre-eclampsia, but these risks can be effectively managed with enhanced monitoring by healthcare professionals.

Prior to her diagnosis, Lana Boocock, who also battles endometriosis, endured debilitating symptoms that required her to use a walking stick regularly. After years of being dismissed by medical professionals, she opted for a hysterectomy, which alleviated the symptoms of adenomyosis but did not cure endometriosis. The lack of recognition and understanding surrounding adenomyosis has led to delayed diagnoses and inadequate treatment options for affected individuals.

Recent advancements in diagnostic tools have allowed for the early detection of adenomyosis in younger women, dispelling the myth that it primarily affects older individuals. Despite the progress, limited diagnostic capabilities within the NHS hinder timely and accurate diagnoses for women battling adenomyosis. The urgent need for increased research, funding, and treatment options is crucial to improve the quality of life for individuals living with adenomyosis and similar conditions

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