PMDD: 'I want a child but I'm scared to come off the pill'

PMDD: 'I want a child but I'm scared to come off the pill'

A condition that affects as many as 8% of women, pre-menstrual dysphoric disorder (PMDD) is a serious concern for those experiencing it. For 29-year-old Marianne Barry, PMDD means that if she doesn’t take the contraceptive pill daily, she could face symptoms of severe anxiety or even suicidal thoughts. Despite the prevalence of PMDD, the average wait time for a diagnosis is around 12 years, leaving many women struggling without proper treatment.

Marianne, a teaching assistant from Cardiff, spent eight years seeking help from her GP before finally getting a private diagnosis two years ago. She described feeling overwhelmed by symptoms that coincided with her menstrual cycle. The lack of understanding and research around PMDD has led to limited treatment options, primarily centered around contraception, which is not ideal for women who wish to become pregnant.

Dr. Llinos Roberts, a GP, highlighted the challenges in diagnosing PMDD, as it is often mistaken for depression or anxiety. She emphasized the importance of maintaining a detailed diary of symptoms to provide evidence to healthcare providers. The Welsh government has recognized the need for improved diagnosis, treatment, and awareness of conditions affecting women, including PMDD, and has allocated funding to address these issues.

Meanwhile, women like Corinne Sinclair face additional challenges as they navigate PMDD while trying to conceive. Corinne, diagnosed with PMDD two months ago, is currently attempting to have a baby. Antidepressants are her only treatment option, and the prospect of having to come off them if she becomes pregnant adds to her concerns. It’s clear that more research and options beyond the contraceptive pill are needed to support women dealing with PMDD, especially those planning to start a family

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