Graeme Souness, a former footballer and Vice President of EB charity DEBRA UK, is continuing his efforts to raise funds for those living with a rare skin condition called epidermolysis bullosa (EB). Last year, he successfully completed a challenging swim across the English Channel for the same cause. Isla Grist, a 16-year-old who has lived with EB since birth, has been the inspiration behind his fundraising efforts.
In their latest fundraising campaign, Souness plans to complete a long cycle ride to raise awareness and funds for EB. In a recent interview with BBC Breakfast, Souness and Grist spoke about their unique friendship and their ongoing efforts to help those who have been affected by EB.
Epidermolysis bullosa is a genetic disorder that primarily affects the skin tissue, making it fragile and easily susceptible to blistering and tearing. The disease is incurable and causes severe pain and discomfort. DEBRA UK is an organization dedicated to providing support, information, and research funding for those living with EB.
Through his continued efforts, Souness hopes to raise both awareness and funds for those affected by this debilitating condition. His inspiring dedication to the cause showcases the immense strength and compassion of the human spirit, and serves as a reminder of the importance of working together to help those in need
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